Thanks Jenni, great to hear that Debbie's home again.

I don't know how you find the energy for all that digging Kathleen!

Doreen xx

Hi all, thank you so much for your well wishes. I have pleurisy and a suspected pulmonary embolism. During my time in hospital, my membership lapsed and I couldn't log on to speak to you all!!! I misssed you all!!! So someone ( not sure who - THANK YOU ) alerted NRAS who have very kindly allowed me on to speak to you all and I will arrange to renew.

I am allowed home on bed rest, pleurisy is sooooo painful. I have an emergency appt with the rheumy on Tuesday at the day hospital, to start stronger treatment, maybe not methotrexate. My liver scan shows fatty liver due to steroids so if anyone has any tips, it would be appreciated. The plan is to get me off the steroids. My kidney function is detoriating again.

It was weird being in hospital, when you are ill all the time. Some people make such a fuss over things we put up with daily. I had injections to thin my blood and some people squealed over them and made a fuss about vomiting etc. I founbd it hard to disguise my trembles and muscle spasms and they attracted a fair few comments. Nurses so discriminate against the young. I was not asked about mobility or care needs as I was 'young'. Yet when the physio finally got to me they were horrified and I was given a zimmer frame ( ) and have been referred to neurophysio for assessment as it was clear that crutches and stick is just not enough support for me anymore

How have you all found hospital?

I missed my neuro appt and the doc wouldnt sanction me going in hospital transport as he said it was too dangerous for me to leave ward ( ) so it has been rearranged to the end of the month.

I hope people get to read this as I havent started a new thread, I so appreciate all your support and Jens texts. Thank you so much also to whoever alerted NRAS to my plight.

Hugs to all my good NRAS friends


Deb x

Hi Debbie,

I`m so pleased you`re home again, but sorry you have been so poorly, and hope things will improve for you very soon. I hope you get some answers from the neurologist.

Yes, some people squeal at the slightest thing, especially if it`s needle-shaped!! Last time I was in, it wasn`t a rheumy ward, and what annoyed me was at breakfast time they would bring the toast, and just leave the marmalade sachet thingy on the tray - which I could never get open!!

Take care,

Kathleen x

Dear Debbie,

So sorry to hear you have been so poorly but glad to hear you are back home.

I am unable to help in respect of the fatty liver issue but had wanted to send you my best wishes.

Take care, Nina x

Hello Debbie and welcome home, you sound to have gone through a horrible and painful time.

Hi Debbie,

I hope that you're feeling a little better, I was appalled to read at the way you were treated in hospital, I think that it reinforces what I've heard a number of times, the fact that despite their best intentions some staff simply don't know how best to deal with a patient with RA, let alone the other problems you're having.

If needed contact the local NRAS group with your concerns. I'm sure it's something they might be able to address with the powers that be.

My thoughts are with you and I hope you feel better soon.

Jo.

Hi have a fab holiday
Heres to steriod jabs kicking in and you feeling brighter hips shoulders ouchy.
hugs lv melly

Thanks all, will chat when I get back!!!!!!!

Have rejoined so no probs now!!!!! Can't get rid of me

Wishing everyone a painfree week!

Deb x